You may wonder how you can get one of these amazing Onyx black and gold bracelets so you, too, can participate???
You can get a bracelet by donating just $50 to help save the lives of children with ultra-rare diseases!
Donate through this site and we will then send you one of these beautiful bracelets and you can post it on your social media in support of this important international movement!
Join us and #ShareYourRARE